NMOSD & MOGAD Community Support Groups
Where shared understanding creates comfort, strength, belonging, and hope.
Patient Health Alliance is committed to fostering supportive spaces where individuals and caregivers living with NMOSD, MOGAD, and rare disease can connect, share, and build strength together.
Our support groups are designed to help you find community, access trusted resources, and gain confidence as you advocate for yourself or your loved one.
Why Support Groups Matter
Many participants report that connecting with peers helps them to feel less alone and more understood.
Learn practical coping strategies from others walking a similar path
Build confidence in navigating daily life with rare disease
Find comfort during difficult seasons, and hope during uncertain ones
“As a caregiver, it often felt like I was navigating this alone and expected to know all the answers. Finding the group has given me a place to talk to other caregivers who share information that is truly helpful and from their experience. We like to talk about our hobbies and music. I look forward to it every month.”
Caregiver’s Group
What to Expect
Our Support Group are led by the PHA Advocacy Team and trained Peer Advocates
Each group is planned by the facilitators to create meaningful conversation
Virtual meetings via ZOOM are accessible to all
Meetings are centered around connection, not medical advice
Judgement free, with no pressure to share if you prefer to attend only to listen
“I don’t think any of my friends outside of this group understand what it is like for me living with NMO. But when I join this group each month, I don’t have to explain anything.”
Young Adults Group
Who Can Join
Our Support Group are led by the PHA Advocacy Team and trained Peer Advocates
Each group is planned by the facilitators to create meaningful conversation
Virtual meetings via ZOOM are accessible to all
Meetings are centered around connection, not medical advice
Judgement free, with no pressure to share if you prefer to attend only to listen
“For years I thought I was the only person who had NMO. Thank you for making sure we have a place to find each other.”
Women’s Group
Our Commitment to Safety and Respect
All groups follow community guidelines
Confidentiality and emotional safety
Respect for different experiences and perspectives
No medical advice
Contact the PHA NMOSD Helpline if you need help finding the right group or have any questions. Helpline@thepha.org 800-819-7820 (call or text)
Community Partners
For additional support group options, please visit our community partners:
