Welcome. You Are Not Alone.

Patient Health Alliance supports individuals and families living with NMOSD and related neuroimmune conditions, including MOG antibody–associated disease (MOGAD).

Learning that you or someone you love has neuromyelitis optica spectrum disorder (NMOSD) can bring many emotions such as fear, confusion, grief, relief at finally having answers, or all of these at once. You may be searching for information, support, or simply a place that understands what you’re going through.

This page, developed by Patient Health Alliance (PHA), provides clear, trusted information about neuromyelitis optica spectrum disorder (NMOSD) to support patients, caregivers, and families as they navigate diagnosis, care, and life with this condition.

While NMOSD is a rare disease, the landscape of care has changed dramatically in recent years. Accelerated research and awareness made possible in part through the early and sustained investment of the Guthy-Jackson Research Foundation, along with committed academic researchers and industry partners has transformed understanding of NMOSD. These collective efforts have led to improved diagnostic accuracy, increased clinical awareness worldwide, and the development of four FDA-approved therapies aimed at preventing relapses and protecting long-term function.

As research has advanced, more neurologists worldwide specialize in NMOSD as well as MOGAD and related neuroimmune conditions.

This information is meant to support learning and understanding. Care decisions should always be made in partnership with your individual healthcare provider.